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neurology study interest registry
Let's discover the next breakthrough, together.
Neurology diseases are on the rise and in order to find treatments we need research participants. Help us find the next frontier of neurology treatments with project:brain at the University of Rochester.
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project:brain aims to advance research aimed at improving the lives of all patients with neurological disorders, including perhaps your own or your loved ones, as we continue to search for cures.
While our researchers are making tremendous progress in advancing innovative tools, new care options, and breakthrough therapies, we need your help. More than ever, our clinical trials depend on participants.
How does it work?
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Read through the consent for details on joining the research registry.
Complete a brief (10-minute) online form, which includes contact, demographic, and clinical information. Your information is secure.
A researcher from the University of Rochester
will contact you via email about a potentially relevant research opprotunity if eligible.
Decide whether or not you are interested in participating in that specific research study. Participation is entirely voluntary.
Privacy is the cornerstone of project:brain
All of your information is kept confidential and is stored in a secure database, following guidelines set forth in the US Health Insurance Portabillity and Accountability Act of 1996 (HIPAA) - the same guidelines as your medical records!
All information collected is only accessible to credentialed University of Rochester researchers - and is never shared outside of the University of Rochester.
All Neurology Study Interest Registry Staff hold certifications in Human Subjects Research (HSR) and Good Clinical Practice (GCP).
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Your participation is the difference
Millions are living with some form of neurological disorder – that’s 1 in 6 individuals according to the American Academy of Neurology.
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